Off Topic Kidney donation/transplant...we've got a date.

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Snaggey said:
Short version....Thursday, 22nd January, 2026.

A bit longer version....
As some of you will know, my wife is on dialysis and needs a kidney transplant. We've been in a kidney sharing scheme for about 2 years now, where i donate one of mine, and their partner donates one to my Mrs. We weren't getting any matches, so about a year ago the Freeman discussed the possibility of a direct transplant from me to the Mrs, even though we aren't the same blood group. Blood tests showed she has very low B antibodies, so the chance of her rejecting my kidney were massive reduced.
Over the last 12 months we've had loads of tests, scans etc....all pointing to a positive outcome for a non-matched transplant.
My live donor co-ordinator rang today with a confirmed date of 22nd January. Got a busy few weeks ahead with further tests just to confirm nothing has changed, pre admission assessments etc, and the Mrs will have a 28 day countdown with certain treatments required on specific days during that countdown. First one will be on T minus 28.

Can't tell you how relieved I am that this is now finally happening, this will be life changing for her. And I get 6 weeks off work <cheers>.

Wasn't sure whether to start a new thread with this, but thought I could put any updates on here.
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Not spoken before on here, but I saw this pop up.

Really pleased for you and your family mate. Hope all goes well and missus makes a swift recovery and is given the new lease of life she deserves

Friend of mine had a double kidney transplant a few years ago and it transformed his life

God bless you all.
 
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Snaggey said:
Cheers Chunk, much appreciated.

I was hoping to give a happy update on Tuesday, along the lines of "its started"....
Hoping I still do, but will maybe know more tomorrow.
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@Snaggey - you have the collective thoughts and prayers/support from this forum mate - hopefully good news and you can look forward to belter times. We are all behind you
 
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Snaggey said:
Where to start mate....not good.
We've been in RVI a&e since 10.00am this morning, just got in about 9.00pm...
She's really not well, some kind of bowel blockage and infection going on, they admitted her to RVI, then transferred her to the Freeman.
She's meant to have a rutiximab infusion start the process on Tuesday, but that might be be postponed till they get to the bottom of whats going on with her now.

I just hope its nothing sinister (they did mention the C word), we're so bloody close man.

Just to add, ive "liked" every post on this thread, but looking back now, loads have disappeared. Seems they didn't all carry over since the update.
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****e.

Keep going mate. All to play for, they'll probably get to the bottom of it. Even if there's a delay, you'll get there!
 
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Snaggey said:
Where to start mate....not good.
We've been in RVI a&e since 10.00am this morning, just got in about 9.00pm...
She's really not well, some kind of bowel blockage and infection going on, they admitted her to RVI, then transferred her to the Freeman.
She's meant to have a rutiximab infusion start the process on Tuesday, but that might be be postponed till they get to the bottom of whats going on with her now.

I just hope its nothing sinister (they did mention the C word), we're so bloody close man.

Just to add, ive "liked" every post on this thread, but looking back now, loads have disappeared. Seems they didn't all carry over since the update.
Click to expand...
I have just seen your post Snaggey, I am gutted for you both. I pray that everything is ok and the procedure get's back on track and goes to plan. Take care both of you
 
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Snaggey said:
Short version....Thursday, 22nd January, 2026.

A bit longer version....
As some of you will know, my wife is on dialysis and needs a kidney transplant. We've been in a kidney sharing scheme for about 2 years now, where i donate one of mine, and their partner donates one to my Mrs. We weren't getting any matches, so about a year ago the Freeman discussed the possibility of a direct transplant from me to the Mrs, even though we aren't the same blood group. Blood tests showed she has very low B antibodies, so the chance of her rejecting my kidney were massive reduced.
Over the last 12 months we've had loads of tests, scans etc....all pointing to a positive outcome for a non-matched transplant.
My live donor co-ordinator rang today with a confirmed date of 22nd January. Got a busy few weeks ahead with further tests just to confirm nothing has changed, pre admission assessments etc, and the Mrs will have a 28 day countdown with certain treatments required on specific days during that countdown. First one will be on T minus 28.

Can't tell you how relieved I am that this is now finally happening, this will be life changing for her. And I get 6 weeks off work <cheers>.

Wasn't sure whether to start a new thread with this, but thought I could put any updates on here.
Click to expand...

Snaggey said:
Short version....Thursday, 22nd January, 2026.

A bit longer version....
As some of you will know, my wife is on dialysis and needs a kidney transplant. We've been in a kidney sharing scheme for about 2 years now, where i donate one of mine, and their partner donates one to my Mrs. We weren't getting any matches, so about a year ago the Freeman discussed the possibility of a direct transplant from me to the Mrs, even though we aren't the same blood group. Blood tests showed she has very low B antibodies, so the chance of her rejecting my kidney were massive reduced.
Over the last 12 months we've had loads of tests, scans etc....all pointing to a positive outcome for a non-matched transplant.
My live donor co-ordinator rang today with a confirmed date of 22nd January. Got a busy few weeks ahead with further tests just to confirm nothing has changed, pre admission assessments etc, and the Mrs will have a 28 day countdown with certain treatments required on specific days during that countdown. First one will be on T minus 28.

Can't tell you how relieved I am that this is now finally happening, this will be life changing for her. And I get 6 weeks off work <cheers>.

Wasn't sure whether to start a new thread with this, but thought I could put any updates on here.
Click to expand...
That is excellent news. The mental turmoil these life-changing events have on the family is indescribable especially at the time they are first diagnosed.
Please keep us updated.
My thoughts and best wishes are with you and your family.
I won't go into detail but I do know first hand the ups and downs these situations have on everyone's well-being - especially mental health.
Hopefully you are now moving out of that dark place and into the light.
God bless.
 
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Becs said:
How's things today @Snaggey?
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Just got in from the Freeman, she feels a lot better in herself.
She went on dialysis there, first one since Friday. She's having investigations done tomorrow to decide best course of action, with a stent or removel of a section of bowel being a possibility.

One thing that was confirmed today was the postponement of the transplant on 22nd January. The transplant co-ordinator came to see us and explained that they cannot give her the rutiximab if the has any kind of infection, reducing her auto immune system would be a big no no.
She did stress that it was a postponement, not a cancellation, with the view to postponing for 4 weeks.
We were both fully understanding of this, and neither of us too disappointed...we just knew it wouldnt happen with how she is at the minute.

Thanks everyone for all the kind messages, I really do appreciate it more than you could ever know. I feel incredibly lucky to have so much support from a group of people ive never met.
You are all diamonds.
 
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Snaggey said:
Just got in from the Freeman, she feels a lot better in herself.
She went on dialysis there, first one since Friday. She's having investigations done tomorrow to decide best course of action, with a stent or removel of a section of bowel being a possibility.

One thing that was confirmed today was the postponement of the transplant on 22nd January. The transplant co-ordinator came to see us and explained that they cannot give her the rutiximab if the has any kind of infection, reducing her auto immune system would be a big no no.
She did stress that it was a postponement, not a cancellation, with the view to postponing for 4 weeks.
We were both fully understanding of this, and neither of us too disappointed...we just knew it wouldnt happen with how she is at the minute.

Thanks everyone for all the kind messages, I really do appreciate it more than you could ever know. I feel incredibly lucky to have so much support from a group of people ive never met.
You are all diamonds.
Click to expand...

Immunocompromised myself, so I understand and you have my sympathies. Even a minor thing like a cold or sickness bug can become so much worse, especially when you're on biologics. Hopefully they can sort the blockage out and she can recover in time for the next attempt.

Make sure you rest tonight mind. You need to keep your strength up as well.

Love to you both xx
 
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Becs said:
Immunocompromised myself, so I understand and you have my sympathies. Even a minor thing like a cold or sickness bug can become so much worse, especially when you're on biologics. Hopefully they can sort the blockage out and she can recover in time for the next attempt.

Make sure you rest tonight mind. You need to keep your strength up as well.

Love to you both xx
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Thanks @Becs.
I was knackered last but couldn't sleep when I went to bed, my mind was working overtime.
Went into work for 7.30 but finished at 2.00 and went straight to the Freeman from work.
Think I'll sleep better tonight though.
 
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Snaggey said:
Thanks @Becs.
I was knackered last but couldn't sleep when I went to bed, my mind was working overtime.
Went into work for 7.30 but finished at 2.00 and went straight to the Freeman from work.
Think I'll sleep better tonight though.
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Hi @Snaggey
I am currently spending a lot of time at the Freeman.
There is a place on site called "Maggie's" which is just off the car park at the Bobby Robson end of the hospital.
İt is tremendous for providing support, chats, tea etc. The staff are very skilled counsellor type people and give exceptional support. You don't have to chat - you can go to just kick-back.
İt is also a lovely "home from home" environment. İt's a nice change from sitting in the hospital cafe.
Just thought I'd mention.
 
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Danube said:
Hi @Snaggey
I am currently spending a lot of time at the Freeman.
There is a place on site called "Maggie's" which is just off the car park at the Bobby Robson end of the hospital.
İt is tremendous for providing support, chats, tea etc. The staff are very skilled counsellor type people and give exceptional support. You don't have to chat - you can go to just kick-back.
İt is also a lovely "home from home" environment. İt's a nice change from sitting in the hospital cafe.
Just thought I'd mention.
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I park in the renal car park which is right next to Maggies, and honestly had no idea it was available for anyone, I thought it was somewhere cancer patients were referred to.

I will bear it in mind, its definately sounds somewhere I would feel comfortable in.
Really appreciate the info, thank you.
 
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