Just Me.

swantastic said:
How's it going ? Was the op a success without it rejecting, side effects etc eased ?
Hope you get back on here regularly soon so we can carry on debating those subjects were world apart on so I can keep proving how wrong you are on most of it all !
Only kidding <cheers> be lucky m8. <smooch>
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Haha, if we all agreed on everything it would be boring as hell !

Well, I'm recovering slowly and each day seems to be an improvement. The fatigue and weakness is hard to deal with - it sometimes feels my legs can't support me - I'm all over the place when I walk, but it is improving. One of the drugs - ciclosporin - which is an immunosuppressant, whilst essential for my recovery causes a lot of side effects - tremors being one - my hands shake quite a lot. Making coffee is hilarious as I'm throwing as much coffee on the worktop as I get in the cup due to the shakes !
I've picked up a couple of infections so far, UTI and chest. All this is to be expected as I have so little immunity at this point.
I've been to the Heath Hospital today - I go every Wednesday where they check my bloods and give me fluids with magnesium as the ciclosporin diminishes the magnesium. Usually takes about 4 to 5 hours.
I had good news there today as well - the aim of the transplant was to kill and get rid of all my own bone marrow as that's what was allowing the cancer to return - the blood cells it was making weren't attacking the nasties and the cancer would flourish. With the donor cells they hope to achieve at least 95% of your bone marrow being the donor. The result today shows I am greater than 99% donor. The words the consultant used were "it's perfect." That's always a nice thing to hear.
I still can't go anywhere where there's people (apart from the hospital) due the the risk of infection. All my vaccines since birth were wiped out as part of the transplant. Still a way to go yet, but everything is moving in the right direction and I'm feeling very positive about things.

Just need the Swans to start winning games now !!
 
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Mono said:
Haha, if we all agreed on everything it would be boring as hell !

Well, I'm recovering slowly and each day seems to be an improvement. The fatigue and weakness is hard to deal with - it sometimes feels my legs can't support me - I'm all over the place when I walk, but it is improving. One of the drugs - ciclosporin - which is an immunosuppressant, whilst essential for my recovery causes a lot of side effects - tremors being one - my hands shake quite a lot. Making coffee is hilarious as I'm throwing as much coffee on the worktop as I get in the cup due to the shakes !
I've picked up a couple of infections so far, UTI and chest. All this is to be expected as I have so little immunity at this point.
I've been to the Heath Hospital today - I go every Wednesday where they check my bloods and give me fluids with magnesium as the ciclosporin diminishes the magnesium. Usually takes about 4 to 5 hours.
I had good news there today as well - the aim of the transplant was to kill and get rid of all my own bone marrow as that's what was allowing the cancer to return - the blood cells it was making weren't attacking the nasties and the cancer would flourish. With the donor cells they hope to achieve at least 95% of your bone marrow being the donor. The result today shows I am greater than 99% donor. The words the consultant used were "it's perfect." That's always a nice thing to hear.
I still can't go anywhere where there's people (apart from the hospital) due the the risk of infection. All my vaccines since birth were wiped out as part of the transplant. Still a way to go yet, but everything is moving in the right direction and I'm feeling very positive about things.

Just need the Swans to start winning games now !!
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Good to hear m8. Onwards and upwards the swans too I hope. <cheers>
 
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Mono said:
Haha, if we all agreed on everything it would be boring as hell !

Well, I'm recovering slowly and each day seems to be an improvement. The fatigue and weakness is hard to deal with - it sometimes feels my legs can't support me - I'm all over the place when I walk, but it is improving. One of the drugs - ciclosporin - which is an immunosuppressant, whilst essential for my recovery causes a lot of side effects - tremors being one - my hands shake quite a lot. Making coffee is hilarious as I'm throwing as much coffee on the worktop as I get in the cup due to the shakes !
I've picked up a couple of infections so far, UTI and chest. All this is to be expected as I have so little immunity at this point.
I've been to the Heath Hospital today - I go every Wednesday where they check my bloods and give me fluids with magnesium as the ciclosporin diminishes the magnesium. Usually takes about 4 to 5 hours.
I had good news there today as well - the aim of the transplant was to kill and get rid of all my own bone marrow as that's what was allowing the cancer to return - the blood cells it was making weren't attacking the nasties and the cancer would flourish. With the donor cells they hope to achieve at least 95% of your bone marrow being the donor. The result today shows I am greater than 99% donor. The words the consultant used were "it's perfect." That's always a nice thing to hear.
I still can't go anywhere where there's people (apart from the hospital) due the the risk of infection. All my vaccines since birth were wiped out as part of the transplant. Still a way to go yet, but everything is moving in the right direction and I'm feeling very positive about things.

Just need the Swans to start winning games now !!
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Outstanding news sir. I hope it's matched by an improvement in how you feel. I'm sure that will come with time.
Chuffed for you.
 
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Mono said:
Haha, if we all agreed on everything it would be boring as hell !

Well, I'm recovering slowly and each day seems to be an improvement. The fatigue and weakness is hard to deal with - it sometimes feels my legs can't support me - I'm all over the place when I walk, but it is improving. One of the drugs - ciclosporin - which is an immunosuppressant, whilst essential for my recovery causes a lot of side effects - tremors being one - my hands shake quite a lot. Making coffee is hilarious as I'm throwing as much coffee on the worktop as I get in the cup due to the shakes !
I've picked up a couple of infections so far, UTI and chest. All this is to be expected as I have so little immunity at this point.
I've been to the Heath Hospital today - I go every Wednesday where they check my bloods and give me fluids with magnesium as the ciclosporin diminishes the magnesium. Usually takes about 4 to 5 hours.
I had good news there today as well - the aim of the transplant was to kill and get rid of all my own bone marrow as that's what was allowing the cancer to return - the blood cells it was making weren't attacking the nasties and the cancer would flourish. With the donor cells they hope to achieve at least 95% of your bone marrow being the donor. The result today shows I am greater than 99% donor. The words the consultant used were "it's perfect." That's always a nice thing to hear.
I still can't go anywhere where there's people (apart from the hospital) due the the risk of infection. All my vaccines since birth were wiped out as part of the transplant. Still a way to go yet, but everything is moving in the right direction and I'm feeling very positive about things.

Just need the Swans to start winning games now !!
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Great news. I realise it's a bit of a long slog but stay strong.
 
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Mono said:
Haha, if we all agreed on everything it would be boring as hell !

Well, I'm recovering slowly and each day seems to be an improvement. The fatigue and weakness is hard to deal with - it sometimes feels my legs can't support me - I'm all over the place when I walk, but it is improving. One of the drugs - ciclosporin - which is an immunosuppressant, whilst essential for my recovery causes a lot of side effects - tremors being one - my hands shake quite a lot. Making coffee is hilarious as I'm throwing as much coffee on the worktop as I get in the cup due to the shakes !
I've picked up a couple of infections so far, UTI and chest. All this is to be expected as I have so little immunity at this point.
I've been to the Heath Hospital today - I go every Wednesday where they check my bloods and give me fluids with magnesium as the ciclosporin diminishes the magnesium. Usually takes about 4 to 5 hours.
I had good news there today as well - the aim of the transplant was to kill and get rid of all my own bone marrow as that's what was allowing the cancer to return - the blood cells it was making weren't attacking the nasties and the cancer would flourish. With the donor cells they hope to achieve at least 95% of your bone marrow being the donor. The result today shows I am greater than 99% donor. The words the consultant used were "it's perfect." That's always a nice thing to hear.
I still can't go anywhere where there's people (apart from the hospital) due the the risk of infection. All my vaccines since birth were wiped out as part of the transplant. Still a way to go yet, but everything is moving in the right direction and I'm feeling very positive about things.

Just need the Swans to start winning games now !!
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Great news -slowly but surely - just stay away from people! They're lifting restrictions over here next week but you're not going to see me at basketball game for a while! or even in a busy restaurant - just not worth it so stay safe!
 
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Mono said:
One of the drugs - ciclosporin - which is an immunosuppressant, whilst essential for my recovery causes a lot of side effects - tremors being one - my hands shake quite a lot.
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Great for drumming though :grin:

Mono said:
With the donor cells they hope to achieve at least 95% of your bone marrow being the donor. The result today shows I am greater than 99% donor. The words the consultant used were "it's perfect." That's always a nice thing to hear.
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That is good to hear, onwards and upwards <ok>

Mono said:
Just need the Swans to start winning games now !!
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You didn't mention delirium as a side effect <whistle> :emoticon-0105-wink: We all need some of that!
 
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As it's been just over 3 months since I had the transplant I had the 3 month assessment this week - all is going well.
I can now start to have all the vaccinations again since they were all wiped out by the transplant - starting with the first Covid jab this coming Sunday.
I have been given the schedule for all of the vaccinations I will be having across the next 9 months. I had no idea there were so many - all I can say is that if I don't have superpowers at the end of it all I'll be very disappointed !
Here's the schedule : (not including the Covid jabs)
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Mono said:
As it's been just over 3 months since I had the transplant I had the 3 month assessment this week - all is going well.
I can now start to have all the vaccinations again since they were all wiped out by the transplant - starting with the first Covid jab this coming Sunday.
I have been given the schedule for all of the vaccinations I will be having across the next 9 months. I had no idea there were so many - all I can say is that if I don't have superpowers at the end of it all I'll be very disappointed !
Here's the schedule : (not including the Covid jabs)
You must log in or register to see images
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Great to read such positive news. I'm delighted for you. I guess this means you'll be match for for April 2nd!<laugh>
 
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