Still unwell with symptoms that have been ongoing since about autumn 2024.
After many repeat visits to my GP, I was referred to rheumatology in September 2025 for possible Sjogren's syndrome.
The symptoms are getting worse. I've been back to the GP twice. There's a new male GP who has seen me both times and dismissed it all as "just menopause related so deal with it."
I spoke to the hospital last week to chase up the referral and they said I'm still on the list as a routine appointment but their waiting list is so long, it'll probably be about another six months before I'm seen. I explained the symptoms are getting worse. He said if went back to the GP, they might be able to expediate it as a more urgent appointment which would bump me up the list.
I filled in an e-consult and explained what is going on and asked to be expediated. The surgery rang me back and said the male GP wants to speak to me. I've got an appointment with him on Thursday. I'm not hopeful of getting help from to be honest.
Main problems are excessively dry eyes. I have to use eye drops several times a day, I keep getting twitching under my eyes, my eyes feel gritty and sore all the time and I keep seeing things in my peripheral vision that are not there.
Excessively dry mouth. My mouth feels claggy and I feel thirsty all the time. I keep coughing due to the dryness. I have a mouth spray I use frequently and I suck mints to get relief. It's affecting speaking as my mouth just dries up and my voice goes if I have to speak for a long time. Noticed it more at the footy when I'm yelling and my voice gives up mid-chant.
Swollen feet and lower legs. Feels like I'm walking on bubble wrap and sometimes it's hard to get my shoes on.
Swollen glands in my neck with pain going up into my jaw and ears.
Muscle and joint aches and pains all over that come and go.
Fatigue that feels like I'm really overworked, even though I'm just doing normal everyday stuff.
Then this last week, I noticed my resting heart rate has dropped. I wear a fitness tracker and my overnight heart rate has dropped to 45-49 bpm which seems a bit low.
So yes, not feeling my best at the moment!