Still pretty crook, mate. One minute ok, then all of a sudden, major nausea and off to the bathroom. The immune systems a bit shot of late, hence the recent flu type scenario and cough, which goes ballistic every now and then. My inflammatory markers for bowel are supposed to be below 50. From the test l’ve had, mine are 140, throw in some other issues and we have a mixed bag. Apart from that, l’ve never felt better! Thanks for asking. A win on the weekend would be some good medicine.
I know mate. There is a massive short of Ambulances due to staff burn out and lack of recruitment, along with reasons I’ve said many times before like Ambulances going to bullshit calls where people really should be looking after themselves. I don’t know the details but seems pretty poor show from the Scottish government (I assume they make the final decision) not to get help sooner. I’m seeing all the headlines saying that they are ‘getting the army in’ to help…..when we here have had assistance from our comrades in the LFB and Metpol for over a year. They act as drivers, if blue light trained, while we do the medical stuff. It’s really nothing new
Wish i could rewind today and start again! My wife who suffers with MS and APS has a fantastic consultant at the Royal Free in Hampstead. She is well overdue her regular appointment and has recently had a relapse, resulting in some new and strange symptoms. For over 2 weeks we have been trying to contact him, left numerous messages etc to get this appointment when she needs it the most. No joy whatsoever, no call back or anything. Today we booked a private appointment for next week, without any problem......guess who with.....yes! Her consultant.
That has ominous implications for the future of healthcare. I heard of something similar, except it was a GP appointment taken privately. The GP was so embarrassed when faced with his NHS patient, he waived his fee. Hope your consultant does likewise but sadly wouldn't bet on it.
Do you know Goldy, ive actually been thinking, more hoping, that he will do that! Its going to be an embarrassing situation all round!
The neurologists up here in Leeds are pretty poor, hence our consultant being based down south. My mrs is supposed to have an MRI every year to see the developments of lesions on her brain and spine. Leeds did 1 MRI in 7 years despite numerous requests to the point of begging. They lost that single MRI scan and then proceeded to say it would be pointless to do another as they have nothing to compare it to! WTF?!?!? The Royal Free were absolutely shocked and took my wife as an NHS patient straight away and have been brilliant....up until now.
Bob I am so sorry to hear this...and also deeply shocked and horrified. This is not what the NHS should be about. I hope that you get the treatment and tests your wife needs and requires. We need a very very big change in the whole social care in this country...the whole thing is falling apart.. My thoughts are in the first place with you and hope you get some good news from your private consultation
I totally agree, this is just our personal experience but im sure many will have had more positive experiences. The nhs has been falling apart since i can remember. I recall our newly diagnosed MS group meeting 15 years ago. Her consultant at the time stressed the fact that they cant predict when a relapse will happen, why it will happen, how long it will last, if one will happen etc. Then went on to promote a new 'wonder drug' that cuts relapses down by over %40 in the study they did. Any questions? Erm yes i said, whats to say those people you trialled on were even going to have a relapse over that period anyway, as youve just stated you dont know why or when sufferers get them. He stormed out of the room to be replaced by an MS nurse. From that day on its just been a farce after a farce.
My mum had MS too, so I am well aware of the uncertainty of the whole wretched disease. My dad and I looked after her for the whole of my childhood. The consultant was right to say, especially 15 years ago about , the we did not know when and why relapses happened. We are beginning to be able to predict now using biomarkers.... His actual answer should have been, that is why we do clinical trials with large numbers to overcome this. We look for signs and symptoms and that's how we learn. He sounds an ignorant and arrogant b****strd, there are a lot about. A lot of advances are being made with MS, so please do not give up fighting. But I realise in this current climate of fear, uncertainty and lack of funding it is very very hard. You live in a country that is at the for front of medical research into MS, so there is definitely hope. Much love to your family. Xx
